A Data Strategy to Capitalize on a Multi Trillion Dollar Opportunity

Rare diseases are often thought about in terms of the financial burden they create, but a new paper from the World Economic Forum urges policymakers, payers, and business leaders to see them as one of the greatest underappreciated opportunities in global health. In “Making Rare Diseases Count: How Better Data Can Unlock a Multi-Trillion Dollar Opportunity,” the organization argues that high-quality, patient-centered data must sit at the core of any rare disease strategy. We spoke to Will Greene, lead author of the paper and a board member of the Foundation for Prader-Willi Research, about the need for smarter collection, sharing, and analysis of data; how doing so can unlock outsized returns in human health, and what it will take to mobilize a broad set of stakeholders around that vision.

You can listen to A Data Strategy to Capitalize on a Multi Trillion Dollar Opportunity online on Radio and Podcast. Open the player on this page to stream the available audio.

A Data Strategy to Capitalize on a Multi Trillion Dollar Opportunity is an episode from RARECast by RARECast.

This episode is 00:26:16 long.

This episode was published on Feb 26, 2026.

Yes. Use the heart button on the episode page to add it to your favorite episodes list.

Yes. This page shows related episodes from RARECast when more episodes are available from the podcast feed.