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When Geography, Cost, and Policy Become as Life-Limiting as a Disease
When Tom Sayiner was diagnosed with the fatal neurodegenerative disease ALS, he and his wife, Tamara, learned that tofersen had been approved in Europe as a therapy that could slow the progression of his genetic form of...
About This Episode
When Geography, Cost, and Policy Become as Life-Limiting as a Disease is an episode from RARECast by RARECast. When Tom Sayiner was diagnosed with the fatal neurodegenerative disease ALS, he and his wife, Tamara, learned that tofersen had b...
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Published Jul 23, 2026, 00:36:20 long, audio available.
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