When Geography, Cost, and Policy Become as Life-Limiting as a Disease
Jul 23, 2026 - 00:36:20
Radio and PodcastLive Radio & PodcastsBusiness
Emerging from a Life in the Shadows
Erythropoietic protoporphyria (EPP) is a rare, inherited metabolic disorder that triggers a toxic photochemical reaction in skin when exposed to light. A short time in the sun for someone with the condition can result in...
About This Episode
Emerging from a Life in the Shadows is an episode from RARECast by RARECast. Erythropoietic protoporphyria (EPP) is a rare, inherited metabolic disorder that triggers a toxic photochemical reaction in skin when exposed to light. A short tim...
Podcast
This episode belongs to RARECast.
Listen Online
Use the player on this page to stream the episode online.
Episode Details
Published Jun 25, 2026, 00:36:36 long, audio available.
Related Episodes
Continue listening to more episodes from RARECast.
A One-Time Cell Therapy to Reset the Immune System in Autoimmune Diseases
Jul 16, 2026 - 00:36:49
Building the Infrastructure for Made‑to‑Order Gene Therapies
Jul 9, 2026 - 00:35:49
Rewiring the Rare Disease Diagnostic Odyssey
Jul 2, 2026 - 00:38:11
Fitting Big Genes into Small Vectors
Jun 18, 2026 - 00:33:24
Targeting Iron Dysregulation in the Neurodegenerative Condition MSA
Jun 11, 2026 - 00:33:09
Long Reads, Shorter Journeys
Jun 4, 2026 - 00:35:23
The Critical Role of Patient Community-Industry Partnership in Advancing a Gene Therapy
May 28, 2026 - 00:46:20