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Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience
When your newborn is healthy one moment and rushed to the PICU the next, life can change in an instant. Today's guest joins us to share her son's journey with severe hemophilia—from unexpected bleeding after a routine ci...
About This Episode
Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience is an episode from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist by Child Life On Call®. When y...
Podcast
This episode belongs to Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist.
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Episode Details
Published Jan 21, 2026, 33:42 long, audio available.
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Questions About This Episode
What is Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience about?
When your newborn is healthy one moment and rushed to the PICU the next, life can change in an instant. Today's guest joins us to share her son's journey with severe hemophilia—from unexpected bleeding after a routine circumcision to a spontaneous brain bleed, emergency surgery, and a months-long PICU stay. This episode explores being thrust into medical motherhood, learning to advocate under unimaginable stress, and how community, child life, and modern medicine help families navigate life with a complex diagnosis. Download our free Children's Hospital Passport to help empower your child and family during hospital stays. Sponsored in part by HealthWell Foundation —learn how you can help families afford life-saving medications at healthwellfoundation.org. Resources Medical Support: Mayo Clinic Children's Center & Hemophilia Treatment Center, Rochester, MN Nonprofit & Community Support: Hemophilia Foundation of Minnesota & the Dakotas Connect with Sami Follow Sami and Cooper's journey on Instagram Connect & Support from Child Life On Call
Where can I listen to Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience?
You can listen to Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience online on Radio and Podcast. Open the player on this page to stream the available audio.
Which podcast is Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience from?
Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience is an episode from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist by Child Life On Call®.
How long is this episode?
This episode is 33:42 long.
When was this episode published?
This episode was published on Jan 21, 2026.
Can I save Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience for later?
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Are there related episodes from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist?
Yes. This page shows related episodes from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist when more episodes are available from the podcast feed.