
Tay-Sachs Disease: A Father's Story of Diagnosis, Parenting, and Purpose
May 13, 2026 - 51:54
Radio and PodcastLive Radio & Podcasts
What happens when your child already senses something life-changing—before anyone has found the words to say it out loud? When serious illness enters a family, children often understand more than we realize. And for care...
When a Parent Has Cancer: What Kids Understand Before We Say It is an episode from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist by Child Life On Call®. What ha...
This episode belongs to Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist.
Use the player on this page to stream the episode online.
Published Apr 15, 2026, 47:03 long, audio available.
What happens when your child already senses something life-changing—before anyone has found the words to say it out loud? When serious illness enters a family, children often understand more than we realize. And for caregivers, the challenge becomes not only navigating medical decisions, but also finding the right way to support their children through it all. This week, Katie sits down with Anna Lonon, founder of the Lonon Foundation, to share her family's story of navigating cancer when her husband Michael was diagnosed with stage three head and neck cancer at just 29 years old. While raising a young son and later welcoming a newborn daughter, Anna faced the unimaginable reality of caregiving, loss, and parenting through profound uncertainty. Anna opens up about what it looked like to balance hospital visits, therapies, and daily life, and the emotional toll of making impossible decisions while trying to hold her family together. She shares powerful moments, including the realization that her young son understood far more about his father's illness than anyone had explained, and how that shaped the way she approached communication in the years that followed. After later facing her own cancer diagnosis, Anna made a different choice—seeking out child life support early to guide honest, developmentally appropriate conversations with her children. Through her experiences, she highlights the importance of listening to children's cues, trusting your instincts as a parent, and creating space for both grief and resilience. If you've ever struggled with how to talk to your child about illness, felt overwhelmed as a caregiver, or wondered how to support your family through uncertainty, this conversation offers validation, insight, and hope. This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website. Resources from today's episode: Visit the Lonon Foundation website Pickles Group Wonders & Worries Connect with Us
You can listen to When a Parent Has Cancer: What Kids Understand Before We Say It online on Radio and Podcast. Open the player on this page to stream the available audio.
When a Parent Has Cancer: What Kids Understand Before We Say It is an episode from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist by Child Life On Call®.
This episode is 47:03 long.
This episode was published on Apr 15, 2026.
Yes. Use the heart button on the episode page to add it to your favorite episodes list.
Yes. This page shows related episodes from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist when more episodes are available from the podcast feed.