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Tay-Sachs Disease: A Father's Story of Diagnosis, Parenting, and Purpose artwork
Kids & family

Tay-Sachs Disease: A Father's Story of Diagnosis, Parenting, and Purpose

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist by Child Life On Call®

May 13, 202651:54Kids & family

In this episode of Inside the Children's Hospital, Katie Taylor sits down with Dr. Matt Goldstein—physician, biotech leader, and father—who shares the story of his daughter, Havi, and her diagnosis with Tay-Sachs disease...

About This Episode

Tay-Sachs Disease: A Father's Story of Diagnosis, Parenting, and Purpose is an episode from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist by Child Life On Call®...

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Episode Details

Published May 13, 2026, 51:54 long, audio available.