Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research

Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation by Rare Genomics Institute

Being born with, and growing up with a rare disease means you don't necessarily know any other way of life. This month we spoke with 23-year-old Anna Laurent, who was born with Alagille Syndrome, and as she grew up, she...View more