Don't Sell Yourself Short: Having a Career after a Rare Disease Diagnosis

No one expects to get a rare disease diagnosis in their mid 20s at the start of a budding career, then get fired for spending too much time away getting treatment, but that's exactly what happened to Candace Lerman in 2014. Now, almost 6 years later, inspired by her own quest for effective treatment, Candace has retrained as a lawyer and is fighting for new treatment approvals on Capitol Hill. Candace joins us to chat about her experience as a rare disease patient, how she went from losing her job, to succeeding at law school, and about the work she is doing to assist nonprofits in the rare disease space. Candace is also going to share some advice for rare disease patients who want to have a career, and give some tips about keeping your health data safe when taking part in clinical research.

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Don't Sell Yourself Short: Having a Career after a Rare Disease Diagnosis is an episode from Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation by Rare Genomics Institute.

This episode is 34:55 long.

This episode was published on Jan 22, 2020.

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