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Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community
Anne Bruns' son Ethan was diagnosed with Atypical Hemolytic Uremic syndrome (Atypical HUS), when he was just 8 years old. Anne tells us how she, Ethan and the rest of their family first reacted to the diagnosis, shares h...
About This Episode
Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community is an episode from Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation by Rare Genomics Institute. An...
Podcast
This episode belongs to Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation.
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Episode Details
Published Aug 14, 2018, 33:22 long, audio available.
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Questions About This Episode
What is Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community about?
Anne Bruns' son Ethan was diagnosed with Atypical Hemolytic Uremic syndrome (Atypical HUS), when he was just 8 years old. Anne tells us how she, Ethan and the rest of their family first reacted to the diagnosis, shares her advice for other families coping with a rare disease diagnosis, and lets us know how Ethan is doing today.
Where can I listen to Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community?
You can listen to Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community online on Radio and Podcast. Open the player on this page to stream the available audio.
Which podcast is Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community from?
Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community is an episode from Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation by Rare Genomics Institute.
How long is this episode?
This episode is 33:22 long.
When was this episode published?
This episode was published on Aug 14, 2018.
Can I save Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community for later?
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Are there related episodes from Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation?
Yes. This page shows related episodes from Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation when more episodes are available from the podcast feed.
Quick Answers About This Episode
Where can I listen to Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community?
You can listen to Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community on this page when the episode audio is available from the podcast feed.
Which podcast is this episode from?
Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community is from Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation by Rare Genomics Institute.
What are the episode details?
Published Aug 14, 2018 and 33:22 long