Voices Uncovered: Understanding Mental Health in Rare Diseases using Social Listening

In this episode, we tune into the unfiltered voices of patients and caregivers navigating life with rare conditions. Through the power of social listening, we uncover the hidden struggles around mental health—stories often left unsaid in clinics but shared openly online. Joined by Lauren Roberts from Rareminds, we explore what these conversations reveal, why they matter, and how they can reshape support for rare disease communities.

You can listen to Voices Uncovered: Understanding Mental Health in Rare Diseases using Social Listening online on Radio and Podcast. Open the player on this page to stream the available audio.

Voices Uncovered: Understanding Mental Health in Rare Diseases using Social Listening is an episode from Rare Disease, Cell & Gene Therapy Monthly RoundUp by Partners4Access.

This episode is 00:30:05 long.

This episode was published on Sep 29, 2025.

Yes. Use the heart button on the episode page to add it to your favorite episodes list.

Yes. This page shows related episodes from Rare Disease, Cell & Gene Therapy Monthly RoundUp when more episodes are available from the podcast feed.