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Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughter Evalyn, 8, has cortical visual impairment and a congenital heart def...
This Mom With a Blog Mia Carella 12 is an episode from Kaleidoscope: The Cortical Visual Impairment Podcast by Jessica Marquardt. Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating lif...
This episode belongs to Kaleidoscope: The Cortical Visual Impairment Podcast.
Use the player on this page to stream the episode online.
Published Jul 24, 2019, 00:30:07 long, audio available.
Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughter Evalyn, 8, has cortical visual impairment and a congenital heart defect.) Mia describes the ups and downs of being a special needs parent and why we should let go of the Super Mom ideal. In this episode: 2:05 – Dance programs for kids with special needs 4:45 – Moving from feeling helpless to feeling more empowered as a mom 9:20 – Explaining rare genetic disorders and little-known conditions, like CVI, to doctors 11:30 – What CVI means for Evalyn (late Phase II CVI) in her day-to-day life 13:20 – Advocating for CVI needs in an IEP meeting 18:30 – Participating in The Miracle League and making baseball adaptations 23:50 – What our kids teach us about resilience, positive outlooks and perspective 26:19 – How her blog has changed her life Resources: thismomwithablog.com pcvis.vision The Miracle League
You can listen to This Mom With a Blog Mia Carella 12 online on Radio and Podcast. Open the player on this page to stream the available audio.
This Mom With a Blog Mia Carella 12 is an episode from Kaleidoscope: The Cortical Visual Impairment Podcast by Jessica Marquardt.
This episode is 00:30:07 long.
This episode was published on Jul 24, 2019.
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Yes. This page shows related episodes from Kaleidoscope: The Cortical Visual Impairment Podcast when more episodes are available from the podcast feed.
You can listen to This Mom With a Blog Mia Carella 12 on this page when the episode audio is available from the podcast feed.
This Mom With a Blog Mia Carella 12 is from Kaleidoscope: The Cortical Visual Impairment Podcast by Jessica Marquardt.
Published Jul 24, 2019 and 00:30:07 long