Sweet Valentina | Cindy Younan | 17
Cindy Younan, founder of cvijourney.com and mother to Valentina (1.5 years), describes the day during her pregnancy when she found out about...
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Education
Kaleidoscope: The Cortical Visual Impairment Podcast
Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. But there's hope. Due to the brain’s ability to change (neuroplasticity), a child...
Episodes
17 episodes
Hindsight and Insight | Kira Brady | 16
Kira Brady tells the journey to her son’s diagnoses, which include cerebral palsy (CP), periventricular leukomalacia (PVL) and cortical visu...
The PhD and the IEP | Barbara Lopez Avila | 15
Barbara Lopez Avila has a PhD in developmental psychology. But she says she still feels ill-prepared to help her son Logan navigate life wit...
Grace Unfiltered | 14
Grace (8) is a vibrant second grader with lots to say. She describes what it’s like to live with cortical visual impairment – the things tha...
Team Archer! | Cheyanne Marcy | 13
Cheyanne Marcy has been an advocate on big stages, on everyday social media platforms and in day-to-day life on behalf of her son, Archer (5...
This Mom With a Blog | Mia Carella | 12
Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (H...
Word Bubble Much? | Tommy Szalapski | 11
Tommy Szalapski – Google accessibility engineer and CVI dad – has created a new app for CVI literacy. The Roman Word Bubbling project automa...
Rosalie, Small but Mighty| Stephanie Kung | 10
Rosalie (1.5) has hydrocephalus, a build-up of fluid in the cavities deep within the brain, which comes with the risk of vision problems. Sh...
Emma’s Renaissance | Lynn Elko | 9
When Emma (16) received a cortical visual impairment diagnosis at age four, CVI literature was not widely available. The consensus was “this...
Helping River Read | Judy Endicott | 8
Judy Endicott works with her grandson River (9) on his reading skills, relying on her background as a special educator and continuing educat...
Mini-Episode | Year of the CVI Advocate | 7
I’m reflecting on 2018. For me, this has been the Year of the CVI Advocate. My life has been transformed by my interactions with fellow CVI...
When Your Daughter Has a Visual Impairment, and Your Niece Does Too | Anna Ault & Lori Kinney | 6
Sisters Anna Ault and Lori Kinney are raising daughters with visual impairments. One has cortical visual impairment, the other an ocular vis...
Life With CVI and Perfect Pitch | Dagbjört Andrésdóttir | 5
Opera performance student Dagbjört Andrésdóttir gives us a glimpse into her life with cortical visual impairment, describing music and stron...
What Happens When Things Go Right? | The Rastogi-Wilsons | 4
Krish (6) received an early CVI diagnosis and guidance from a teacher of the visually impaired who knew how to intervene appropriately, base...
Going All In: From Phase I to Phase III | Alisha Waugh | 3
When Alisha Waugh and her husband learned that their son Griffen (10) has a cortical visual impairment (CVI), they committed to improving hi...
The Early Days: A Mother's First Year on the CVI Journey | Rachel Bennett | 2
Henry (5) has a new cortical visual impairment (CVI) diagnosis. His mom, Rachel, now understands why he is so frustrated. He can't interpret...
Testing. Are CVI Parents Out There? | The Marquardts | 1
Grace (6) reads sight words, enjoys hearing chapter books and shows an affinity for math. Yet she can’t interpret illustrations in a childre...