209. 'Maisy & Dadda' - Changing the Down Syndrome Narrative by Simply Living Life
In this episode, we welcome Adam Franks from Yorkshire, England, the father behind Maisy & Dadda. Adam shares how raising his four-year-old...
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Kids & family
If We Knew Then - A Down Syndrome Podcast
We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn’t know very much a...
Episodes
20 of 210 episodes
208. Changes To Special Education And How We Continue To Advocate with Stephanie Hall Meredith
In this powerful episode we sit down with longtime disability advocate Stephanie Hall Meredith for an honest conversation about the changes...
207. The Back-to-School Anxiety No One Talks About in Special Education
Back to school can bring excitement, but for but for caregivers of students with Down syndrome, it often brings anxiety. Before the first da...
206. A Pediatrician Answers All Your Down Syndrome Questions
In this episode, we sit down with Dr. Mona Patel Gera from Children’s Hospital Los Angeles and talk through the “laundry list” that comes wi...
205. If Inclusion Is the Goal, Why Are So Many Still Left Out?
In this episode we speak with Micah Kessel, founder of Playground of Empathy and creator of Empathable, a project designed to help people ex...
204. Siblings Of Siblings With Down Syndrome
This week we are joined by our daughter Sophia and guests Dr. Brian Skotko and Sue Levine to talk about the sibling experience in families o...
203. A High School Diploma Is Attainable - May Mallari
This week we talk with attorney and parent advocate May Mallari about what happens when expectations are set too early in a child’s educatio...
202. Alzheimer's And Down Syndrome - Dr. Brian Skotko
In this episode we revisit with Dr. Brian Skotko to talk about the impact of Alzheimer’s in the Down syndrome community and discuss some pro...
201. A Conversation About Down Syndrome If You Happened Upon The Unfortunate YouTuber
In this episode we have a very important conversation with Dr. Stephanie Hall Meredith, a nationally recognized public health researcher, au...
200. The Power Of Words
It's our 200th episode and we decided to talk about the most powerful gift you have as an advocate... your words. We not only discuss the wo...
199. Being Told To Grieve The Child You Didn't Have
What happens when one of the first things you’re told after a Down syndrome diagnosis is to grieve the child you didn’t have? In this episod...
198. It's Liam's 16th Birthday!
This episode is a celebration of Liam and also a reflection of what the last 16 years have been. We discuss unfair societal constructs along...
197. An Update with Melissa Kynoch - Bertie's In School
We reconnect with Melissa Kynoch, whom many will remember from the BBC documentary Life and Birth. Millions of viewers around the world were...
196. Buddy Up For Life with Beth Gibson
Beth Gibson, Founder & Executive Director of Buddy Up for Life/Buddy Up Tennis, founded Buddy Up for Life in 2008 when her then 3 ½-year-old...
195. Yellow Flower Gills Me Whole - Poetry By Sid Ghosh
Here is another beautiful conversation we had with Dr. Vaish Sarathy and her son, poet Sid Ghosh who has published a book of poetry titled Y...
194. That’s Not How It Happened: A Novel By Craig Thomas
In this episode, we sit down with How I Met Your Mother co-creator Craig Thomas to talk about his new novel, That’s Not How It Happened. The...
193. Accommodations In An IEP Are A Right Not A Favor
When schools treat accommodations like a gift instead of a legal right, students with disabilities are the ones who pay the price. In this e...
192. Choosing A Pediatrician with Dr. Ilona Kleiner
In this episode we revisit a conversation with our longtime pediatrician, Dr. Ilona Kleiner, who has been with our family since the day Soph...
191. Play Dumb and Sabotage - Speech Pathologist Jeaneen Tang
Today we sit down with speech-language pathologist and author Janine Tang to talk about her new book "Play Dumb and Sabotage: Mindfully Unde...
190. Advocating Through The Challenges Of A New School Year
In this episode, we discuss the challenges of a new school year and how we advocate to create a foundation of support for Liam, with the int...