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We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn’t know very much a...
This episode is a celebration of Liam and also a reflection of what the last 16 years have been. We discuss unfair societal constructs along...
We reconnect with Melissa Kynoch, whom many will remember from the BBC documentary Life and Birth. Millions of viewers around the world were...
Beth Gibson, Founder & Executive Director of Buddy Up for Life/Buddy Up Tennis, founded Buddy Up for Life in 2008 when her then 3 ½-year-old...
Here is another beautiful conversation we had with Dr. Vaish Sarathy and her son, poet Sid Ghosh who has published a book of poetry titled Y...
In this episode, we sit down with How I Met Your Mother co-creator Craig Thomas to talk about his new novel, That’s Not How It Happened. The...
When schools treat accommodations like a gift instead of a legal right, students with disabilities are the ones who pay the price. In this e...
In this episode we revisit a conversation with our longtime pediatrician, Dr. Ilona Kleiner, who has been with our family since the day Soph...
Today we sit down with speech-language pathologist and author Janine Tang to talk about her new book "Play Dumb and Sabotage: Mindfully Unde...
In this episode, we discuss the challenges of a new school year and how we advocate to create a foundation of support for Liam, with the int...
In this episode Stephen and Lori sit down on a quiet summer morning to reflect on the season of transitions, both for their family and for t...
Every year we face the stresses of annual appointments and assessments. Today we talk about game plans and strategies to help prepare for th...
Happy Mother’s Day to all the mothers in this beautiful Down syndrome community. You are a force and we thank and celebrate you. Episode Tra...
This week we are revisiting our interview with Melissa Kynoch, known by many for being featured on the BBC documentary LIFE AND BIRTH. Milli...
In this episode we discuss the need and power for us to cultivate self pride and worth within the disability community. In doing so, we null...
Today we are joined again by Mrs. Christina Aries, the Director of Adult Development at Citizens of the World Charter Schools for the second...
Today we are joined by Mrs. Christina Aries, the Director of Adult Development at Citizens of the World Charter Schools for a two-part discu...
It’s World Down Syndrome Day 2025 and we did it! We released an episode on March 21st. Many in our community do so well at preparing for thi...
This week we have another conversation with filmmakers Olivier and Hilda to discuss their IEP experience featured in their film FORGET ME NO...
Happy Birthday Liam! In this week’s episode we discuss the lessons we have learned over the last 15 years in both education, behavior and so...
Today we are joined by Hilda and Olivier, who are documentarians of a fantastic film “Forget Me Not”. This film tells the story of our child...
In July 2025, DSDN will host their annual Rockin' Dad Retreat for fathers of children with Down Syndrome to gather from across the country....
Lori recorded this episode in October but what is very apparent is how challenges and the unknown are an everyday thing that helps tell our...
Steven Gustafson is a founding member and bassist of the band 10,000 Maniacs. His sister, Cathy, had Down syndrome and we got a chance to di...
This week we revisit our conversation with Sid and Vaish Sarathy. Sid, who has the duel diagnoses of autism and Down syndrome. Although he i...
This week we once again sit down with Julie Picot but this time we are briefly joined by her daughter Elyse. We take a deep dive on the spee...
This week we revisit our interview with Jake Pratt, an inspiring young man from Vestavia Hills, Alabama who has never let expectations defin...
Today we celebrate all the powerful mothers who give so much to their children day in and day out. Remember how strong you are. The world ru...
This week we had the privilege to talk to Dr. Elizabeth Head, Professor and Vice Chair for research at the University of California, Irvine...
The world lost pioneering Down syndrome advocate Carl Erskine on April 16, 2024, at the age of 97. Carl and his wife Betty, were involved de...
This week we are fortunate to have Ben Hughes back on the podcast to discuss the Down Syndrome Diagnosis Network’s (DSDN) annual “Rockin’ Re...
Our son turned 14 last weekend and in this episode we reflect on the joys, challenges and growth we've experienced together on this journey...
This week we revisit our interview with Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Ne...
This week we have the wonderful Julie Picot back on the show to discuss her experience transitioning her daughter, Elyse from TK to Kinderga...
Dr. Ilona Kleiner has been both our children's pediatrician since birth. Today we discuss with her the importance of always seeing the whole...
In this episode, we discuss Charlotte Fien’s path to advocacy, breaking down the barriers of education, the love story between her and her h...
Happy Martin Luther King Day! We start this new year by revisiting with our friend, Zen Buddhist Priest, Maezen Miller. We discuss having pa...
Follow Stephen while he unexpectedly flies back to Louisiana due to his mother’s illness. He reflects on the importance of experiencing all...
October is Down Syndrome Awareness Month and in this episode, Stephen and Lori discuss another angle in your next Awareness Campaign. Some o...
Joining us today is Liam Starkey from The Inclusive Hub. The Hub was started in 2016 helping small groups of Autistic children around Liverp...
Today we are joined by Sandra Baker from the Down Syndrome Association of Los Angeles (DSALA) and Dr. Brian Skotko from the Down Syndrome Cl...
This week we were joined by Katelyn Quintero from Best Buddies International, which is a nonprofit 501(c)(3) organization dedicated to estab...
We had such fun talking to Liz Plachta, the founder of Ruby’s Rainbow! Ruby’s Rainbow grants scholarships to students with Down syndrome who...
Today, we are joined by Nancy Gianni to talk about her foundation, GiGi’s Playhouse, which provides FREE, life-changing therapeutic, educati...
In this episode we give an update on our son Liam, a 13-year old in middle school, and discuss how far he has come, what supports have helpe...
This is our conversation with actress Megyn Price to discuss inclusion, the importance of encouraging others to express their uniqueness and...
This week we revisit the story of Jad Issa, a man with Down Syndrome who is a husband, father and respected citizen. At diagnosis, parents o...
This episode is the entire conversation we had with Matt MacNeil and Ed Casagrande from the Canadian Down Syndrome Society concerning their...
This week we are joined by Abby Brandon-Livits and Misty Adams from the National Down Syndrome Society to talk about the 2023 NYC Buddy Walk...
Today we're joined again by Dr. Eric Rubenstein, an Assistant Professor of Epidemiology at Boston University School of Public Health. Eric i...
Today we're joined by Dr. Tom Mahan, who specializes in Alzheimer’s research with a focus on individuals with Down syndrome. Tom is a father...