Episode 48 with Amy Flanagan

In the forty eighth episode of HC&U, we interview Amy Flanagan. Amy is the mom of Classical HCU patient, Carson. Carson was originally misdiagnosed with Marfan syndrome. Amy shares Carson's and his family's journey to diagnosis with classical homocystinuria including the challenges and struggles they have faced while navigating the transition of care between two rare diseases. During Lindsey's Low Pro Bitesss, we talk about vegetarian curry. Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! Carson's Story &u

You can listen to Episode 48 with Amy Flanagan online on Radio and Podcast. Open the player on this page to stream the available audio.

Episode 48 with Amy Flanagan is an episode from HC&U by Ben Massengale.

This episode is 39:22 long.

This episode was published on Feb 26, 2026.

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