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HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on...
In the fiftieth episode of HC&U, we interview Ruby. Ruby is a patient with classical HCU living in Australia. She shares her journey with ho...
In the forty ninth episode of HC&U, we interview Avery Volz. Avery is a PhD student at Cincinnati Children's Hospital Medical Center (CCHMC)...
In the forty eighth episode of HC&U, we interview Amy Flanagan. Amy is the mom of Classical HCU patient, Carson. Carson was originally misdi...
In the forty seventh episode of HC&U, we interview Melanie Colter. Melanie is the mom of Classical HCU patient, Masen. Listen along as Melan...
In the forty sixth episode of HC&U, we interview Alicia and Miguel Gonzalez. Alicia and Miguel are the parents of cobalamin C patient, Andre...
In the forty fifth episode of HC&U, we interview Tiny and Tomas Devitos. Tiny and Tomas are the parents of classical HCU patient, Alexander....
In the forty fourth episode of HC&U, we interview Zara Bono. Zara is the mother of Severe MTHFR patients, Zoraiz and Areeba. Hear Zara's sto...
In the forty third episode of HC&U, we interview Liz Gonzalez. Liz is the mother of classical HCU patients, Everett and Clementine. Liz and...
In this bonus episode of HC&U, we present Ben's conversation with Erica Wright, a clinical genetic counselor at The Children ' s Hospital Co...
In this bonus episode of HC&U, we present our Adulting 101 panel from September 11, 2025. This was a joint effort between HCU Network Americ...
In the forty second episode of HC&U, we interview Brittany Parke. Brittany is the mother of cblG patients, Drew and Grayson. Brittany and I...
In the forty first episode of HC&U, we interview Hannah Llewellyn-Jones. Hannah is the mother of Olive, a cblG patient living in the UK. Han...
In the fortieth episode of HC&U, we interview Rene van Oorschot. Rene is the father of Nico, a classical HCU patient living in Scotland. Ren...
We hope you enjoy Ben's interview with Allison Herrity, senior policy analyst at NORD, about Newborn Screening in America and what the path...
In the thirty ninth episode of HC&U, we interview Michael Stevenson. Michael is a classical HCU patient living in Australia. Michael and I d...
We hope you enjoy the 2025 WHAD panel featuring Erica Arnaud, Brandon Tornes, and Brittany Hunter hosted by Ben. Thank you to our panel spon...
In the thirty eighth episode of HC&U, we interview Andreana Lanpouthakoun. Andreana is a Cobalamin G patient. Andreana and I discuss her jou...
In the thirty seventh episode of HC&U, we interview Jessie and Trace Fordham. Trace is a Cobalamin C patient. Trace, his mom, and I discuss...
In the thirty sixth episode of HC&U, we interview Dr. Curtis Coughlin, genetic counselor, PhD researcher, and associate professor at the Uni...
In this bonus episode of HC&U, we interview Joy Brown whose daughter, Ari, is a classical HCU patient. We discuss Ari's homocystinuria journ...
In the thirty fifth episode of HC&U, we interview Yasenia Castro whose sister, Enelcita,is an HCU patient. We discuss Enelcita's diagnosis j...
In the thirty fourth episode of HC&U, we interview Laurie Bonucci whose son, Joe, is a Classical HCU patient. We discuss Joe's delayed diagn...
In the thirty third episode of HC&U, we interview Holly Fulginiti whose husband Chris was diagnosed with homocystinuria. We discuss the Chri...
In this bonus episode of HC&U, we talk with Kristen Skvorak, a preclinical consultant focused on rare diseases, about drug development, rese...
In the thirty second episode of HC&U, we interview Valerie Mayorga, Vicente Jimenez, and Victor Jimenez, 3 adult patients living with Classi...
In the thirty first episode of HC&U, we interview Dylan Simon, Senior Director of Policy at EveryLife Foundation and Dr. Neena Champaigne, D...
In this bonus episode of HC&U, we share patient and caregiver submitted audio clips of successes with HCU. We hope this episode uplifts and...
In the thirtieth episode of HC&U, we interview Dr. Stephanie Hitti, a neuropsychology postdoctoral fellow at Children's Hospital Colorado. W...
In the twenty ninth episode of HC&U, we interview Brandon Tornes, father to Mason, a patient diagnosed Cobalamin C. We discuss Mason's journ...
In the twenty eighth episode of HC&U, we interview Gabbi Lewis who is an HCU patient, advocate, and recent college graduate. We discuss Gabb...
In the twenty seventh episode of HC&U, we interview Alex Orange Drink who is a musician/songwriter and adult HCU patient and advocate. We di...
In this bonus episode of HC&U, we present HCU Network America's live panel discussion called "Navigating the Maze" for World Homocystinuria...
In the twenty sixth episode of HC&U, we interview Sam Stallings, HCU patient and advocate. We discuss Sam's experience living with multiple...
In the twenty fifth episode of HC&U, we interview Jamela Gutierrez, HCU patient and advocate. We discuss Jamela's journey with HCU and patie...
In the twenty fourth episode of HC&U, we interview Liz Carter, communications manager of HCU Network America, caregiver advocate, and mother...
In this episode, we speak with Brittany Parke, mom of Grayson, who lives with Homocystinuria, Cobalamin G. We discuss why advocacy and resea...
In the twenty second episode of HC&U, we continue our interview with Danae! In this episode, we interview (again) Danae Bartke , an HCU pati...
In the twenty first episode of HC&U, we focus on getting our feet back under us as we return from a long hiatus! In this episode, we intervi...
In the twentieth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding th...
In this episode, we interview Danae Bartke, the executive director of HCU Network America. We discuss dealing with HCU and school and naviga...
In the eighteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding t...
In the seventeenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding...
In the sixteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding th...
In the fifteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding th...
In the fourteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding t...
In the thirteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding t...
In the twelfth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the...
In the eleventh episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the...
In the tenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the po...
In the ninth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the po...