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Science & Medicine

The rare disease treatment gap

White Coat, Black Art on CBC Radio by CBC

May 8, 202600:27:06Science & Medicine

Three million Canadians live with a rare disease, but many still struggle to get treatment. Jeremy Harany was diagnosed as a child with hypophosphatasia, which weakens bones and can cause early tooth loss, but then spent...

About This Episode

The rare disease treatment gap is an episode from White Coat, Black Art on CBC Radio by CBC. Three million Canadians live with a rare disease, but many still struggle to get treatment. Jeremy Harany was diagnosed as a child with hypophospha...

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This episode belongs to White Coat, Black Art on CBC Radio.

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Episode Details

Published May 8, 2026, 00:27:06 long, audio available.

Questions About This Episode

What is The rare disease treatment gap about?

Three million Canadians live with a rare disease, but many still struggle to get treatment. Jeremy Harany was diagnosed as a child with hypophosphatasia, which weakens bones and can cause early tooth loss, but then spent decades without answers. A chance connection later in life led him to life-changing treatment. Now he’s pushing for faster, more consistent care for others with rare diseases.

Where can I listen to The rare disease treatment gap?

You can listen to The rare disease treatment gap online on Radio and Podcast. Open the player on this page to stream the available audio.

Which podcast is The rare disease treatment gap from?

The rare disease treatment gap is an episode from White Coat, Black Art on CBC Radio by CBC.

How long is this episode?

This episode is 00:27:06 long.

When was this episode published?

This episode was published on May 8, 2026.

Can I save The rare disease treatment gap for later?

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Are there related episodes from White Coat, Black Art on CBC Radio?

Yes. This page shows related episodes from White Coat, Black Art on CBC Radio when more episodes are available from the podcast feed.

Quick Answers About This Episode

Where can I listen to The rare disease treatment gap?

You can listen to The rare disease treatment gap on this page when the episode audio is available from the podcast feed.

Which podcast is this episode from?

The rare disease treatment gap is from White Coat, Black Art on CBC Radio by CBC.

What are the episode details?

Published May 8, 2026 and 00:27:06 long