Could Huntington's families be forced into institutions? The truth behind the new DOJ memo!
What does the new Justice Dept. memo really mean for people living with Huntington's Disease and their families? We separate fact from fear...
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WeHaveAVoice
WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly s...
Episodes
20 of 129 episodes
Positive Eugenics - Should we worry?
That's not a rhetorical question. I'm not asking to provoke. I'm asking because something is shifting in our culture, and people with geneti...
AMT-130 Update: Breaking through the hype
AMT-130 was sold as the breakthrough Huntington’s families have waited generations for — a one-shot gene therapy that “changes everything.”...
AMT-130 and the 75% Slowdown: What Just Changed for Huntington’s Disease—and What Hasn’t
We Have A Voice Radio dives into the AMT-130 news for Huntington’s—what this one-time, brain-delivered gene therapy is, what the reported “7...
The Blue Within
"The Blue Within" dives into the surprising potential of methylene blue—a simple dye with extraordinary promise—in the fight against Hunting...
Chair By The Window: A Huntington's Disease Story
A Huntington's Disease Story about Ellen, abandoned by everyone she loved.
Huntington's Isn't Rare...It's Ignored
A short monologue about how Huntington's disease is being ignored.
The Endless Scroll – Huntington’s Disease in the Age of Doomscrolling
The modern phenomena of Doomscrolling and its affect on Huntington's Disease. A short monologue.
Nicotine Patches & Huntington’s Disease: Is There Hope?
A short monologue concerning the possible use of nicotine patches for Huntington's Disease.
The House That Doesn't Sleep
A short monologue about caregiver burnout.
The Kids Who Carry Too Much
Child caregivers are no longer uncommon and the numbers are rising.
44% of Men Die Prematurely
44% of men die prematurely in Canada. Most likely higher in the US. But what about men with Huntington's Disease?
HD Research: What's in store for 2025 and beyond according to AI
Kevin uses AI to analyze all information to get a picture of what may happen in regards to HD research in light of possible policy changes d...
Rare Disease Day
Host, Kevin Jess, talks about Rare Disease Day which is just around the corner
New Guidelines to Revolutionize Care for Huntington's Disease Patients
Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD
Bunny Clark and the 10th Annual Huntington's Heroes Walk
Bunny Clark talks about The Walk for Huntington's Disease May 28th
Erin Paterson - Huntington's Disease Heroes
WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the c...
WeHaveAFace! What's next?
Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.
Worthlessness
Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.
Coffee Talk with Kevin and Jen (Chat #7)
Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community