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WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly s...
That's not a rhetorical question. I'm not asking to provoke. I'm asking because something is shifting in our culture, and people with geneti...
AMT-130 was sold as the breakthrough Huntington’s families have waited generations for — a one-shot gene therapy that “changes everything.”...
We Have A Voice Radio dives into the AMT-130 news for Huntington’s—what this one-time, brain-delivered gene therapy is, what the reported “7...
"The Blue Within" dives into the surprising potential of methylene blue—a simple dye with extraordinary promise—in the fight against Hunting...
A Huntington's Disease Story about Ellen, abandoned by everyone she loved.
A short monologue about how Huntington's disease is being ignored.
The modern phenomena of Doomscrolling and its affect on Huntington's Disease. A short monologue.
A short monologue concerning the possible use of nicotine patches for Huntington's Disease.
A short monologue about caregiver burnout.
Child caregivers are no longer uncommon and the numbers are rising.
44% of men die prematurely in Canada. Most likely higher in the US. But what about men with Huntington's Disease?
Kevin uses AI to analyze all information to get a picture of what may happen in regards to HD research in light of possible policy changes d...
Host, Kevin Jess, talks about Rare Disease Day which is just around the corner
Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD
Bunny Clark talks about The Walk for Huntington's Disease May 28th
WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the c...
Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.
Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.
Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community
Jen and Kevin talk about hope, testing and other topics
Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25
Kevin talks about memories of his wife Sheila and how it's important to nurture friendships
Jen gets an unexpected call and discussion ensues.
Jen and Kevin chat about disappointments over the years in the Huntington's Disease community
Jen and Kevin chat about the death of a loved one and strategies leading up to and after death.
Kevin and Jen kick off a series of coffee talks concerning Huntington's Disease
James speaks about the Project Change and an array of topics
Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease. To watch this epi...
Louise Vetter (President and CEO of HDSA) underscores her support for the initiative to change the current diagnostic criteria and introduce...
Erin speaks with Kevin about her 5 1/2 year struggle with fertility amidst having a diagnosis of HD
Kevin Jess speaks about his wife Sheila, how they met up until her recent passing.
Please listen to James Valvano interview Jennifer Simpson HDSA on the HDParityAct! It's time to pass the HD Parity Act and remove the two-ye...
#WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month! Our incredible special guest is John Howar...
On May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Pari...
Jimmy Pollard talks about his new children's book, Finding Nana's Smile
Kevin Jess interviews James Valvano about the first season of WeHaveAFace TV
Dr. Kelsey M. Finn is a geneticist, bioethicist, and empathy enthusiast. Dr. Finn has devoted a large part of her career to researching whet...
Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence. Dr. Herwig Lange of the George Huntington Institute of...
Dr. Kelsey Finn speaks about when to talk to your children about Huntington's Disease and her new children's book.
Marie Blankenshop, Jen Almeida and Crystal Zachary speak out their new Facebook Wish List group
Dr. Susan Potter and Dr. Herwig Lange tackle a serious issue concering separation anxiety during the pandemic.
#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion.
Mary talks with Leanne and Kevin about yesterday and today
#WeHaveAVoice Radio! German Doctor: Dr. Ansgar Klimke - New approach for hydroxychloroquine in aerosol form for #COVID19 #Coronavirus #Sprea...
#WeHaveAFace #WeHaveAVoice: Discussing the Coronavirus (COVID-19) - #Coronavirus #COVID19 #CDC #HuntingtonsDisease
Cherry Chism talks about her husband leaving the Roche Trial
Louise Vetter, President, and CEO of the Huntington's Disease Society of America (HDSA) speaks with James Valvano about the HD Trial Finder....
Dr. Peg talks about the ChAND-HD trial.
Jonathan speaks to us about Rare Disease Day event as well as reusing existing drugs to treat or cure HD/JHD
WeHaveAFace founder, James Valvano talks about his upcoming retirement and the future of WeHaveAFace.