TLP #28 : Curing with a Community - David Fajgenbaum

In this episode, we kick off our Season 3 guests with David Fajgenbaum who shares his extraordinary journey to cure himself from Castleman disease. David shares his very personal story of searching for a cure to his own disease He describes how having a vision for the future helped him to survive He insists that patients can be part of the process and can be active collaborators in the search for cures He pleads for a shift from an Investigator initiated model to a Community initiated model involving collaboration between researchers, clinicians and patients David also insists that approved drugs could be used to treat additional diseases He tells us about why and how he wrote a book, “Chasing My Cure” about his journey He describes the value that good mentors bring He advises to keep focused, surround yourself with good people, learn to delegate and to take important recruitment decisions David recommends getting as much feedback as you can from many people He mentioned these labs, scientists, institutions and companies University of Pennsylvania School of Medicine : Georgetown University : Castleman Disease Collaborative Network : Castleman Disease : University of Oxford : National Institutes of Health (NIH) : Janet Woodcock from the FDA : Brian Wallach : I am ALS : Frits van Rhee : | Sharon Terry : Arthur Rubenstein : Benjamin Castleman : To find out more about David and Every Cure visit these links X-Twitter : @DavidFajgenbaum Every Cure David’s LinkedIn Every Cure’s LinkedIn : David’s Book “Chasing My Cure: A Doctor's Race to Turn Hope Into Action” : Support the show 💌 Subcribe to our newsletter and receive the episodes and news directly in your mailbox : To find out more about Renaud and Jonathan : Twitter : LinkedIn : Twitter : LinkedIn :

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TLP #28 : Curing with a Community - David Fajgenbaum is an episode from The Lonely Pipette : helping scientists do better science by Jonathan Weitzman & Renaud Pourpre.

This episode is 71:54 long.

This episode was published on Apr 29, 2024.

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