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How Parents Took Development of a Gene Therapy into Their Own Hands

RARECast by RARECast

Apr 23, 202600:45:41Business

Nicole Johnson and Nasha Fitter are both mothers of daughters with the ultra-rare neurodevelopmental condition FOXG1 syndrome, which currently has no approved disease-modifying therapies. The disorder causes profound dev...

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How Parents Took Development of a Gene Therapy into Their Own Hands is an episode from RARECast by RARECast. Nicole Johnson and Nasha Fitter are both mothers of daughters with the ultra-rare neurodevelopmental condition FOXG1 syndrome, whic...

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Published Apr 23, 2026, 00:45:41 long, audio available.

How Parents Took Development of a Gene Therapy into Their Own Hands

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