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Education

I'm Aware That I'm Rare: the phaware® podcast

phaware global association

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episode...

I'm Aware That I'm Rare: the phaware® podcast Podcast Guide

Listen to I'm Aware That I'm Rare: the phaware® podcast, a Education podcast by phaware global association. Stream 1,173 episodes in English, follow new audio stories, and play episodes online on Radio and Podcast.

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Browse this show under Education podcasts.

Episodes

20 episodes are loaded now from a catalog of 1,173. More episodes can be opened from this page.

Episodes

20 of 1,173 episodes

Dawn Ogden - phaware® podcast interview 578

Three Generations. One Gene. A Rare Disease She Couldn't Outrun. Dawn Ogden has lived her entire adult life under the shadow of pulmonary hy...

Jun 24, 2026
Audio unavailable

Episode 578 - Dawn Ogden

Three Generations. One Gene. A Rare Disease She Couldn't Outrun. Dawn Ogden has lived her entire adult life under the shadow of pulmonary hy...

05:53Jun 23, 2026

Carla Kinsey - phaware® podcast interview 577

She Went Looking for Answers and Ended Up Building a Lifeline Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla Kin...

Jun 17, 2026
Audio unavailable

Episode 577 - Carla Kinsey

She Went Looking for Answers and Ended Up Building a Lifeline Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla Kin...

11:19Jun 16, 2026

Karen Sawyer - phaware® interview 576

PH Tried to Isolate Her. She Turned Loneliness into a Lifeline for Others Pulmonary hypertension nearly stole Karen Sawyer's sense of self....

Jun 10, 2026
Audio unavailable

Episode 576 - Karen Sawyer

PH Tried to Isolate Her. She Turned Loneliness into a Lifeline for Others Pulmonary hypertension nearly stole Karen Sawyer's sense of self....

11:37Jun 9, 2026

Carol Stokley - phaware® interview 575

A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life Canadian CTEPH patient, Carol Stokley was healthy, active, and unstoppab...

Jun 3, 2026
Audio unavailable

Episode 575 - Carol Stokley

A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life Canadian CTEPH patient, Carol Stokley was healthy, active, and unstoppab...

14:47Jun 2, 2026

Jenny Yang, MD - phaware® interview 574

From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still...

May 27, 2026
Audio unavailable

Episode 574 - Jenny Yang, MD

From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still...

07:45May 26, 2026

Eric Borstein - phaware® interview 573

Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive m...

May 20, 2026
Audio unavailable

Episode 573 - Eric Borstein

Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive m...

13:28May 18, 2026

Nicole Dempsey - phaware® interview 572

Don't Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pul...

May 13, 2026
Audio unavailable

Episode 572 - Nicole Dempsey

Don't Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pul...

08:29May 12, 2026

Florin Dumitrescu - phaware® interview 571

He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Flor...

May 6, 2026
Audio unavailable

Episode 571 - Florin Dumitrescu

He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Flor...

11:29May 5, 2026

Terri Keplinger - phaware® interview 570

She'd Never Been Sick - Until a Rare Disease Hit Like a Brick Wall Terri Keplinger went from healthy and unstoppable to fighting for breath...

Apr 29, 2026
Audio unavailable

Episode 570 - Terrie Keplinger

She'd Never Been Sick - Until a Rare Disease Hit Like a Brick Wall Terri Keplinger went from healthy and unstoppable to fighting for breath...

09:46Apr 28, 2026

Rey Adam Rodriguez - phaware® interview 569

From Newlywed to Newly Diagnosed Six months after saying "I do," Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey sha...

Apr 22, 2026
Audio unavailable

Episode 569 - Rey Adam Rodriguez

From Newlywed to Newly Diagnosed Six months after saying "I do," Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey sha...

11:18Apr 21, 2026