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I'm Aware That I'm Rare: the phaware® podcast cover
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I'm Aware That I'm Rare: the phaware® podcast

phaware global association

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episode...

Episodes

20 of 1,206 episodes

Episode 595 - Jennifer Lombardi

Twice Transplanted. Still Dancing. Still Following Her Passion. Most people never face one life-saving transplant. Jennifer Lombardi has sur...

20:50Oct 20, 2026

Kirsty McGeown - phaware® interview 594

She Checked the Organ Donor Box at 16, Now She's Waiting for Someone Else's Lungs Canadian pulmonary hypertension patient, Kirsty McGeown si...

Oct 14, 2026
Audio unavailable

Episode 594 - Kirsty McGeown

She Checked the Organ Donor Box at 16, Now She's Waiting for Someone Else's Lungs Canadian pulmonary hypertension patient, Kirsty McGeown si...

13:53Oct 13, 2026

Episode 593 - Lana Melendres-Groves, MD

The Impact of Exercise and Fitness on Improving Patient Outcomes Pulmonary hypertension patients are often handed powerful medications, but...

08:53Oct 6, 2026

Wendy Mercado - phaware® interview 592

A Mom of Three, a Hidden Killer, and the Specialist Who Saved Her Balancing life as a full-time teacher, wife, and mother of three, PAH pati...

Sep 30, 2026
Audio unavailable

Episode 592 - Wendy Mercado

A Mom of Three, a Hidden Killer, and the Specialist Who Saved Her Balancing life as a full-time teacher, wife, and mother of three, PAH pati...

14:02Sep 29, 2026

Jenn Lalonde - phaware® interview 591

23 Years of Survival and Still Fighting the Darkness No One Sees Surviving a rare disease isn't always heroic. Sometimes it's depression, is...

Sep 23, 2026
Audio unavailable

Episode 591 - Jenn Lalonde

23 Years of Survival and Still Fighting the Darkness No One Sees Surviving a rare disease isn't always heroic. Sometimes it's depression, is...

07:19Sep 22, 2026

Lynn Bouseman - phaware® interview 590

"Get Your Affairs in Order": She Told Her Doctor She'd Be Back in 20 Years In 1994, before there were any FDA approved treatments for pulmon...

Sep 16, 2026
Audio unavailable

Episode 590 - Lynn Bouseman

"Get Your Affairs in Order": She Told Her Doctor She'd Be Back in 20 Years In 1994, before there were any FDA approved treatments for pulmon...

08:12Sep 15, 2026

Episode 589 - Abby and Ari Borstein

PH Didn't Just Change One Life, It Changed an Entire Family When pulmonary hypertension changed their father, Eric Borstein's life, sisters...

26:11Sep 8, 2026

Episode 588 - Donna Wallace Harmon

She Didn't Just Survive Being Rare. She Made Meaning Out of It. PH patient, Donna Wallace Harmon can't fly. She lives with limits. She knows...

09:52Sep 1, 2026

Carolyn Mathur - phaware® interview 587

Out of Breath, Not Out of Dreams: One Woman's PH Journey Across 79 Countries Carolyn Mathur was told she had only hours to live. Then days....

Aug 26, 2026
Audio unavailable

Episode 587 - Carolyn Mathur

Out of Breath, Not Out of Dreams: One Woman's PH Journey Across 79 Countries Carolyn Mathur was told she had only hours to live. Then days....

10:33Aug 25, 2026

Sherri Odusanya - phaware® interview 586

Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger. Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way h...

Aug 19, 2026
Audio unavailable

Episode 586 - Sherri Odusanya

Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger. Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way h...

10:40Aug 18, 2026

Kathy Ilano - phaware® interview 585

Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment Pulmonary hypertension patient, Kathy Ilano believed she'd never...

Aug 12, 2026
Audio unavailable