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I'm Aware That I'm Rare: the phaware® podcast cover
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I'm Aware That I'm Rare: the phaware® podcast

phaware global association

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episode...

Episodes

20 of 1,195 episodes

Episode 589 - Abby and Ari Borstein

PH Didn't Just Change One Life, It Changed an Entire Family When pulmonary hypertension changed their father, Eric Borstein's life, sisters...

26:11Sep 8, 2026

Episode 588 - Donna Wallace Harmon

She Didn't Just Survive Being Rare. She Made Meaning Out of It. PH patient, Donna Wallace Harmon can't fly. She lives with limits. She knows...

09:52Sep 1, 2026

Carolyn Mathur - phaware® interview 587

Out of Breath, Not Out of Dreams: One Woman's PH Journey Across 79 Countries Carolyn Mathur was told she had only hours to live. Then days....

Aug 26, 2026
Audio unavailable

Episode 587 - Carolyn Mathur

Out of Breath, Not Out of Dreams: One Woman's PH Journey Across 79 Countries Carolyn Mathur was told she had only hours to live. Then days....

10:33Aug 25, 2026

Sherri Odusanya - phaware® interview 586

Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger. Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way h...

Aug 19, 2026
Audio unavailable

Episode 586 - Sherri Odusanya

Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger. Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way h...

10:40Aug 18, 2026

Kathy Ilano - phaware® interview 585

Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment Pulmonary hypertension patient, Kathy Ilano believed she'd never...

Aug 12, 2026
Audio unavailable

Episode 585 - Kathy Ilano

Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment Pulmonary hypertension patient, Kathy Ilano believed she'd never...

11:35Aug 11, 2026

Christina Ryan - phaware® interview 584

She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient For Christine Ryan, being ill wasn't the hardest part, letting other...

Aug 5, 2026
Audio unavailable

Episode 584 - Christine Ryan

She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient For Christine Ryan, being ill wasn't the hardest part, letting other...

08:43Aug 4, 2026

Amanda Chickie - phaware® interview 583

The Dream She Lost at 18 and the Child Who Gave It Back One of the first questions Amanda Chickie asked after her pulmonary hypertension dia...

Jul 29, 2026
Audio unavailable

Episode 583 - Amanda Chickie

The Dream She Lost at 18 and the Child Who Gave It Back One of the first questions Amanda Chickie asked after her pulmonary hypertension dia...

13:11Jul 28, 2026

Lisa Harder - phaware® interview 582

A New Mother's Greatest Fear: "Am I Going to See My Daughter Grow Up?" When Lisa Harder became a new mom, she never imagined that shortness...

Jul 22, 2026
Audio unavailable

Episode 582 - Lisa Harder

A New Mother's Greatest Fear: "Am I Going to See My Daughter Grow Up?" When Lisa Harder became a new mom, she never imagined that shortness...

08:53Jul 21, 2026

Cathleen Harrington - phaware® interview 581

From Wedding Bells to a Life-Altering Diagnosis Cathleen Harrington was young, athletic, and newly engaged when pulmonary hypertension chang...

Jul 15, 2026
Audio unavailable

Episode 581 - Cathleen Harrington

From Wedding Bells to a Life-Altering Diagnosis Cathleen Harrington was young, athletic, and newly engaged when pulmonary hypertension chang...

16:29Jul 14, 2026

Episode 580 - Evan Holm, LMSW, SWCM

Why a Social Worker Might Be the Most Important Person on a PH Care Team When pulmonary hypertension finally gets a name, fear rushes in fas...

06:15Jul 7, 2026