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Education

I'm Aware That I'm Rare: the phaware® podcast

phaware global association

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episode...

I'm Aware That I'm Rare: the phaware® podcast Podcast Guide

Listen to I'm Aware That I'm Rare: the phaware® podcast, a Education podcast by phaware global association. Stream 1,183 episodes in English, follow new audio stories, and play episodes online on Radio and Podcast.

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Browse this show under Education podcasts.

Episodes

20 episodes are loaded now from a catalog of 1,183. More episodes can be opened from this page.

Episodes

20 of 1,183 episodes

Amanda Chickie - phaware® interview 583

The Dream She Lost at 18 and the Child Who Gave It Back One of the first questions Amanda Chickie asked after her pulmonary hypertension dia...

Jul 29, 2026
Audio unavailable

Episode 583 - Amanda Chickie

The Dream She Lost at 18 and the Child Who Gave It Back One of the first questions Amanda Chickie asked after her pulmonary hypertension dia...

13:11Jul 28, 2026

Lisa Harder - phaware® interview 582

A New Mother's Greatest Fear: "Am I Going to See My Daughter Grow Up?" When Lisa Harder became a new mom, she never imagined that shortness...

Jul 22, 2026
Audio unavailable

Episode 582 - Lisa Harder

A New Mother's Greatest Fear: "Am I Going to See My Daughter Grow Up?" When Lisa Harder became a new mom, she never imagined that shortness...

08:53Jul 21, 2026

Cathleen Harrington - phaware® interview 581

From Wedding Bells to a Life-Altering Diagnosis Cathleen Harrington was young, athletic, and newly engaged when pulmonary hypertension chang...

Jul 15, 2026
Audio unavailable

Episode 581 - Cathleen Harrington

From Wedding Bells to a Life-Altering Diagnosis Cathleen Harrington was young, athletic, and newly engaged when pulmonary hypertension chang...

16:29Jul 14, 2026

Episode 580 - Evan Holm, LMSW, SWCM

Why a Social Worker Might Be the Most Important Person on a PH Care Team When pulmonary hypertension finally gets a name, fear rushes in fas...

06:15Jul 7, 2026

Laura Camponeschi - phaware® interview 579

Who Cares for the Caregiver When Everyone Else Comes First? Behind every pulmonary hypertension patient is someone quietly running on empty....

Jul 1, 2026
Audio unavailable

Episode 579 - Laura Camponeschi

Who Cares for the Caregiver When Everyone Else Comes First? Behind every pulmonary hypertension patient is someone quietly running on empty....

06:36Jun 30, 2026

Dawn Ogden - phaware® podcast interview 578

Three Generations. One Gene. A Rare Disease She Couldn't Outrun. Dawn Ogden has lived her entire adult life under the shadow of pulmonary hy...

Jun 24, 2026
Audio unavailable

Episode 578 - Dawn Ogden

Three Generations. One Gene. A Rare Disease She Couldn't Outrun. Dawn Ogden has lived her entire adult life under the shadow of pulmonary hy...

05:53Jun 23, 2026

Carla Kinsey - phaware® podcast interview 577

She Went Looking for Answers and Ended Up Building a Lifeline Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla Kin...

Jun 17, 2026
Audio unavailable

Episode 577 - Carla Kinsey

She Went Looking for Answers and Ended Up Building a Lifeline Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla Kin...

11:19Jun 16, 2026

Karen Sawyer - phaware® interview 576

PH Tried to Isolate Her. She Turned Loneliness into a Lifeline for Others Pulmonary hypertension nearly stole Karen Sawyer's sense of self....

Jun 10, 2026
Audio unavailable

Episode 576 - Karen Sawyer

PH Tried to Isolate Her. She Turned Loneliness into a Lifeline for Others Pulmonary hypertension nearly stole Karen Sawyer's sense of self....

11:37Jun 9, 2026

Carol Stokley - phaware® interview 575

A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life Canadian CTEPH patient, Carol Stokley was healthy, active, and unstoppab...

Jun 3, 2026
Audio unavailable

Episode 575 - Carol Stokley

A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life Canadian CTEPH patient, Carol Stokley was healthy, active, and unstoppab...

14:47Jun 2, 2026

Jenny Yang, MD - phaware® interview 574

From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still...

May 27, 2026
Audio unavailable

Episode 574 - Jenny Yang, MD

From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still...

07:45May 26, 2026