Science & Medicine

#387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System

DNA Today: A Genetics Podcast by Kira Dineen

Mar 27, 2026Science & Medicine

Recorded live at UConn’s 2026 Rare Disease Symposium, we reveal the grueling work of the rare journey, from battling medical dismissal and insurance denials to the fierce advocacy required.

About This Episode

#387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System is an episode from DNA Today: A Genetics Podcast by Kira Dineen. Recorded live at UConn’s 2026 Rare Disease Symposium, we reveal the grueling work of the rare journ...

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Published Mar 27, 2026.

#387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System

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