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#387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System
Recorded live at UConn’s 2026 Rare Disease Symposium, we reveal the grueling work of the rare journey, from battling medical dismissal and insurance denials to the fierce advocacy required.
About This Episode
#387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System is an episode from DNA Today: A Genetics Podcast by Kira Dineen. Recorded live at UConn’s 2026 Rare Disease Symposium, we reveal the grueling work of the rare journ...
This episode belongs to DNA Today: A Genetics Podcast.
Audio availability depends on the podcast feed.
Published Mar 27, 2026.
Questions About This Episode
What is #387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System about?
Recorded live at UConn’s 2026 Rare Disease Symposium, we reveal the grueling work of the rare journey, from battling medical dismissal and insurance denials to the fierce advocacy required.
Where can I listen to #387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System?
You can listen to #387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System online on Radio and Podcast. Open the player on this page to stream the available audio.
Which podcast is #387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System from?
#387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System is an episode from DNA Today: A Genetics Podcast by Kira Dineen.
How long is this episode?
The episode duration depends on the source podcast feed and may not always be available.
When was this episode published?
This episode was published on Mar 27, 2026.
Can I save #387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System for later?
Yes. Use the heart button on the episode page to add it to your favorite episodes list.
Are there related episodes from DNA Today: A Genetics Podcast?
Yes. This page shows related episodes from DNA Today: A Genetics Podcast when more episodes are available from the podcast feed.
Quick Answers About This Episode
Where can I listen to #387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System?
You can listen to #387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System on this page when the episode audio is available from the podcast feed.
Which podcast is this episode from?
#387 The Hidden Work of Rare Disease: Navigating a Broken Healthcare System is from DNA Today: A Genetics Podcast by Kira Dineen.
What are the episode details?
Published Mar 27, 2026