
Tay-Sachs Disease: A Father's Story of Diagnosis, Parenting, and Purpose
May 13, 2026 - 51:54
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This week's guest opens up about the shock of an emergency C-section at 25 weeks and 3 days, the fear of entering the NICU for the first time, and the powerful role Child Life Specialists played in supporting not only Vi...
Micro Preemie at 25 Weeks: A NICU Mom's Journey is an episode from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist by Child Life On Call®. This week's guest opens...
This episode belongs to Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist.
Use the player on this page to stream the episode online.
Published Feb 18, 2026, 43:09 long, audio available.
This week's guest opens up about the shock of an emergency C-section at 25 weeks and 3 days, the fear of entering the NICU for the first time, and the powerful role Child Life Specialists played in supporting not only Vincent, but their entire family, including his older brother. She reflects on what helped her cope during long NICU days, how she advocated for herself using her healthcare background, and what she wishes she had known about the "medically complex" label sooner. This episode explores sibling bonding in the NICU, the impact of a truly integrated care team, the importance of addressing social determinants of health, and how resilience can grow in the smallest of patients. Anna's story is a beautiful reminder that families may not remember every name—but they will always remember how they were made to feel. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources Mentioned Today's Episode: Hand to Hold March of Dimes Ronald McDonald House Caringbridge Connect with Anna: Anna is open to connecting with other NICU families—please email us at podcast@childlifeoncall.com if you would like to connect with her! Connect & Support from Child Life On Call:
You can listen to Micro Preemie at 25 Weeks: A NICU Mom's Journey online on Radio and Podcast. Open the player on this page to stream the available audio.
Micro Preemie at 25 Weeks: A NICU Mom's Journey is an episode from Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist by Child Life On Call®.
This episode is 43:09 long.
This episode was published on Feb 18, 2026.
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