Uncovering Huntington's Disease with Author and Advocate Lori Jones

In this episode of the Brain & Life podcast, co-host Dr. Katy Peters speaks with advocate and author Lori Jones about growing up in a family affected by Huntington's disease (HD), reflecting on stigma, isolation, caregiving, and the inspiration behind her memoir, Spared: A Memoir of Risk and Resolve. Dr. Peters is then joined by Dr. Katie Moore, assistant professor of neurology at Duke University Medical Center, who explains what Huntington's disease is and how genetic testing can impact individuals and families living with HD. Additional Resources Lori Jones What is Huntington's Disease? Promising Therapies May Help Huntington's Disease Brain & Life Podcast Episodes on These Topics Author Tanita Allen on Existing with Huntington's Disease Rare Thoughts on a Rarer Neurologic Condition We Are Brave Together with Jessica Patay We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media Guests : Lori Jones @lorijoneswrites; Dr. Katie Moore @DukeNeuroRes Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

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Uncovering Huntington's Disease with Author and Advocate Lori Jones is an episode from Brain & Life by American Academy of Neurology.

This episode is 36:02 long.

This episode was published on Feb 19, 2026.

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